Our Steering Committee

The MTM and CNM Patient Registry Steering Committee comprises a mixture of clinical and research expertise, as well as representation from patients and patient organisations. Collectively, the committee are responsible for:

• Reviewing and voting on requests to use registry data (called ‘enquiries’), to ensure they are appropriate, ethically approved, and in-line with registry objectives and remit.
• Advising on strategic direction, opportunities and priorities for the registry.
• Providing input and guidance where requested on publications, posters, presentations or other materials.
• Reviewing reports and proposals for registry projects.
• Ensuring the registry is well governed and promoting it where appropriate.

If you have any questions about the steering committee please contact the Registry Curator Jo Bullivant.