Newsletters

If you would like to receive a copy of the Registry newsletter (published twice a year), please fill in your details below:

 

---

Previous newsletters:

• April 17, 2018 : Myotubular and Centronuclear Myopathy Patient Registry Newsletter - Spring 2018

• July 28, 2017 : Summer Newsletter: Myotubular and Centronuclear Myopathy Patient Registry

• December 15, 2016: Winter Newsletter: Myotubular and Centronuclear Myopathy Patient Registry