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Myotubular and Centronuclear Myopathy Patient Registry

Aart den Hollander

Patient Representative – ZNM – Zusammen Stark! e.V.
Netherlands

Aart den Hollander is the Dutch representative of the patient organisation ZNM – Zusammen Stark (CNM – Together Strong). His son Timo (2007) has Myotubular Myopathy. In his working life he is a Technical Consultant for a social housing corporation in Amsterdam.