Aart den Hollander and Claudia Saegert
Patient Representatives – ZNM – Zusammen Stark! e.V.
Aart den Hollander is the Dutch representative of the patient organisation ZNM – Zusammen Stark (CNM – Together Strong). His son Timo (2007) has Myotubular Myopathy. In his working life he is a Technical Consultant for a social housing corporation in Amsterdam.
Claudia Saegert is the German representative of the patient organisation ZNM – Zusammen Stark! e.V. (CNM – Together Strong). Her son Eric (born in 2019) lives with x-linked Myotubular Myopathy. In her working life, she is a Purchasing Manager for Ford, living with her family in Cologne, Germany.